The reason I made this page is to spread awareness about vesibular disorders, since I have one but not a whole lot of people know what they are, or even what the vesibular system is, and how a disorder like this can just absolutely fuck your life up. The definition of a vestibular balance disorder, specifically vesibular neuritis, according to Johns Hopkins Medicine, is:

"Vestibular balance disorders can affect orientation and balance. Vestibular neuritis is a condition that affects the vestibular nerve, which connects the inner ear to the brain, causing prolonged vertigo usually in the absence of significant hearing loss. Viral etiologies are considered the primary cause of vestibular neuritis. Symptoms include continuous vertigo (the sensation of spinning or tilting), inability to balance or walk straight, nausea/vomiting, and reduced ability to focus or concentrate."

I developed this disorder in 2021, and was in the ER on two different occasions for severe nausea and vertigo. The hospital misdiagnosed me both times and it took 5 weeks to get an accurate diagnosis from a combination of visits to an audiologist, ENT, neurologist, & physical therapist. The physical therapist in particular had a strong inkling that I got this disorder as a result of covid, since an antibody test I got was positive & this was also a month before the vaccine became available for my age group. (I probably got it from a coworker who sneezed into their hand or something bc tbh my job at the time was not the best work environment). Because I got my diagnosis so late, the damage to my nervous system was already done, and there was nothing I could do to try and mitigate the symptoms besides physical therapy. I had to relearn how to walk, how to drive a car, how to ride a bike, and how to turn my head without falling over.

One of the symptoms of vesibular neuritis (and the worst symptom imo) is the brain fog/confusion that comes with it. Your brain unconciously spends a LOT of energy just processing spacial awareness, and if one nerve in that machine breaks, all the energy that normally gets spent elsewhere has to take on spacial processing work instead. Think of it as a soda factory, where different buildings are used for different processes of making the soda can (sugar refining, flavor extraction, metal pressing the cans, printing labels, etc.). If the sugar refinery loses power, then all the other buildings have to take on part of the sugar refining work, even though that's not what they're built to do, and the whole soda manufacturing development slows down as a result. The brain fog is a result of the sugar refinery (vesibular nerve) not working. If there's more than one audio source happening around me it gets really hard for me to concentrate. I can listen to my hardcore/gabber music by itself just fine, but if I'm in a big box store with music playing, people talking, intercom announcements, check out noises, etc, the symptoms get VERY bad. It's the same with visual stimulation. Flashing lights/trippy visuals will trigger my symptoms the same way. It's almost like a combo of non-leathal epilepsy + autistic sensory overload. Which SUCKS bc I like my bright colors and my fast loud music!! This also is what makes it very hard for me to learn new things or retain information. Learning how to code this website took longer than I wanted bc I was fighting with my brain the entire time lol.

Vestibular disorders are also not included in the list of ADA protected disabilities, even though a damanged vesibular system can be life changing and can affect you every day. This also means that it's harder to find solid information outside of scientific papers and harder for people to believe that you're suffering. It's extremely fucking aggrevating to think that a single damaged nerve the width of a hair can cause this much bullshit. And since it takes several tests to determine the cause (let me tell you that videonystagmography test SUCKED SO MUCH ASS) + the symptoms are so weird and confusing, it takes a lot of time and effort just to get people to believe that you have a problem. Thankfully after months of physical therapy, I can walk on my own again and ride my bike/drive. I still get "bad brain days" tho and it's a struggle sometimes, but thankfully I have a lot of support, and every physical therapist I've seen has told me that vesibular studies are getting more funding and notice thanks to the uptick of cases due to Long COVID.

To anyone else suffering with a similar disability, know that I am clasping your hand Predator Meme Style in solidarity.